When their precious 20-month-old daughter Ava was diagnosed with a rare neurogenic disorder called Angelman Syndrome (AS), parents Rachel and Cole immediately sought out any information they could find on the disorder. They quickly discovered that FAST was a leading champion for individuals with AS, seeking not only to improve quality of life but also to find an effective treatment for the disorder
Photos care of FAST
Holly and her family had just moved to Marin when their eldest child, Ellie, was 15 months old. Holly was newly pregnant with her second child and wanted to find a safe, easy place to take Ellie to play outside. She joined Pixie Park on the recommendation of a neighbor and was hooked. The lovely enclosed playground was a lifesaver because Holly didn't have to worry about Ellie running away or into the street - so much so that even when she was nine months pregnant Holly continued to feel comfortable bringing Ellie there.
Photos care of Julia Zave Photography
After a year of looking for answers to explain her son’s developmental delays, Jen’s son Asher was diagnosed with Joubert Syndrome (JS) in May of 2016. The Joubert Syndrome and Related Disorders Foundation (JSRDF) is where Jen and her family turned to learn critical information about the disease and, thankfully, where they also discovered a strong support system.
Photos care of Jen Brady