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After a year of looking for answers to explain her son’s developmental delays, Jen’s son Asher was diagnosed with Joubert Syndrome (JS) in May of 2016. The Joubert Syndrome and Related Disorders Foundation (JSRDF) is where Jen and her family turned to learn critical information about the disease and, thankfully, where they also discovered a strong support system.
Photos care of Jen Brady
We first met Paula and her family through Instagram, following along with their active adventures there and on her blog FitFam6. We met up at our spring launch event and were especially struck by the curiosity and excitement of little Asher, their youngest son. Paula recently shared Asher’s journey with us and we were inspired to share their story and partner together through PLAE-it-forward.