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Before Brittany Williams’ daughter Brylan had celebrated her first birthday, she was diagnosed with primary lymphedema, a condition that causes accumulation of lymph in the body’s soft tissue. Though there is currently no cure for lymphedema, there is treatment to help manage the painful and chronic swelling, particularly in the limbs. Unfortunately, proper treatment is not only expensive, it is also hard to acquire because so few medical professionals are knowledgeable in this field. Not one to sit around and complain without working to help find a solution, Brittany founded Brylan’s Feat Foundation to help children fighting lymphedema receive this often inaccessible treatment.
Photos care of Brittany Williams
After a year of looking for answers to explain her son’s developmental delays, Jen’s son Asher was diagnosed with Joubert Syndrome (JS) in May of 2016. The Joubert Syndrome and Related Disorders Foundation (JSRDF) is where Jen and her family turned to learn critical information about the disease and, thankfully, where they also discovered a strong support system.
Photos care of Jen Brady