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Posts tagged 'epilepsy'

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PLAE-it-forward + Juliann, of The Cute Syndrome Foundation

December 4, 2017 3484 Views

We’re willing to bet that you haven’t given much thought to your body’s powerful ion channels lately. Yet, even when you ignore them, they still perform a critical role in your body to keep you functioning and playing the way you do. Sadly, a very rare and as-yet-inexplicable mutation in the SCN8A gene that encodes one of those super-important ion channels can cause us to have seizures, developmental delays, and an overall medically fragile state.

PLAE-it-forward + Emmy, of CHIME Charter School

October 3, 2017 4459 Views

Six-year-old Emerson is a fun, feisty, funny, slightly sassy, smiley, recently-promoted-from-kindergarten, girl who likes Trolls, swimming, reading, and riding horses, and also happens to have cerebral palsy and epilepsy. Emerson actively crushes assumptions about what a little girl in a wheelchair who is non-verbal is like. She even grabbed Senator Kamala Harris’s attention when Sen. Harris was fighting to save the ACA and Medi-Cal.