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When Lauren and Marc’s son Holden was diagnosed with it a little over two years ago she found that her sole resource for learning about her son’s condition was the Dup15q Alliance. As they left the geneticist’s office, Lauren and Marc pored over the Dup15q Alliance’s website for hours, learning everything they possibly could about Dup15q Syndrome. Lauren says, “Upon registering with the alliance, I was immediately connected with our regional rep and she was able to talk me through the diagnosis and help us understand what types of therapies and specialists Holden would benefit from.” This call let Lauren and Marc exhale. They were not alone.
Photos care of Lauren Weissberg
Before he was even born, baby Dean had a perinatal ischemic stroke. When loving parents Lauren and Ryan learned that their as-yet-unborn son had already had a stroke, they were devastated and immediately began learning all they could about his situation. While conducting their research, they discovered the website of non-profit organization Children’s Hemiplegia and Stroke Association (CHASA), an internationally-recognized authority on the needs of children who have hemiplegic cerebral palsy.