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Only one year ago, in July of 2017, a conference was held for families and individuals impacted by a chromosome 17q12 disorder. Those in attendance had come from all corners of the United States and were just meeting for the first time at the conference, but they shared common goals and quickly formed a board consisting of four parents and a genetic counselor. Within six months, they received the official 501(c)3 designation from the IRS to operate as a nonprofit organization by the name 17q12 Foundation.
Photos care of Liz Fourie