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Posts tagged 'Sanfilippo Syndrome'

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PLAE-it-forward + Ellie

February 1, 2018 3091 Views

When two-year-old Ellie Shamaly was diagnosed with Sanfilippo Syndrome last year, her entire family’s focus changed. Sanfilippo Syndrome is a fatal neurological disease in children that is often referred to as “Childhood Alzheimer’s.” Figuring out how to move forward became an urgent concern, as there is currently no FDA-approved treatment or cure for the condition affecting 1 in 70,000 children.